What is EMPaCT?
EMPaCT is an award-winning model of equity-promoting patient engagement that is spreadable and scalable.
EMPaCT was co-designed by diverse members of community as a space where:
- People with diverse lived/living experiences can engage with health and social system decision-makers in a safe way
- The collective lived/living experiences of people are mobilized into knowledge through community-based Health Equity Analysis
- Recommendations are provided to decision-makers on how to make their projects more inclusive and equity-promoting
- New research questions and policy directives are initiated that are person-centred and community-driven
EMPaCT builds system capacity to do equity-promoting patient engagement in the following ways:
- Advances the applied health science of ‘how to’ do equity-promoting patient engagement
- Seeds new EMPaCTs within the health and social care
- Shares knowledge through co-designed tools and resources
- Offers experiential learning opportunities that actively develop skills and competencies
Members of EMPaCT also directly inform the design and activities of the Improving Cancer Care Equity (ICCE) Research Program led by Dr. Ambreen Sayani. ICCE is focused on increasing equity in cancer care through promoting cancer prevention, early detection and access to high quality cancer care for all population groups.
Evolution of EMPaCT
Equity Mobilizing Partnerships in Community (EMPaCT) is a novel and scalable patient partnership model co-designed to centre the voices of diverse community members and build capacity for equity-promoting patient-oriented decision-making in healthcare. EMPaCT was co-initiated in 2020 by patient-oriented researcher, Dr. Ambreen Sayani (Scientific Lead) and patient partner, Alies Maybee (Patient Partner Lead) who set out to challenge exclusionary patient engagement practices in healthcare.
Our vision is to connect patient/community voices into healthcare decision-making in a timely, efficient and equitable way so that policies, research, and programs include the perspectives of diverse peoples.
EMPaCT works with project implementers (EMPaCT Impact Partners) who are motivated to learn from people with diverse lived experiences, enhance the inclusivity of their work, and reduce health inequities.
Impact Partners include:
- health system decision-makers
- policy-influencers including health/social service administrators
- research and quality improvement teams
EMPaCT Impact Partners engage with EMPaCT to understand:
- how different communities might be impacted by a project
- what unintended outcomes may occur as a result of a project
- how equity in health can be better addressed for the communities involved
EMPaCT has a five-step engagement process. As part of this process, Impact Partners receive a confidential written report validated by all EMPaCT members, which captures key themes and recommendations from the community engagement.
EMPaCT has also built expertise as a group to conduct Health Equity Analysis. Unlike most HEAs which are conducted by scientists and policy administrators, EMPaCT members use the diversity of their lived experiences as a collective analytical lens to deliver HEA evaluations and recommendations.
To our understanding, we are the first community-based group of people with diverse lived experiences to offer and conduct HEAs.
To learn more about how we work, view this video: EMPaCT: Partnering for Change
Interested in a health equity focused engagement with EMPaCT? Contact Dr. Ambreen Sayani at (ambreen.sayani@wchospital.ca), Scientist at the Women’s College Research Institute, Women’s College Hospital.
EMPaCT has co-developed various tools to support better praxis (reflection + action) in equity-promoting engagement. Sign up through this Google Form to receive new resources as they become available.
Resource | Description |
---|---|
Power Wheel | The Power Wheel is an action-oriented tool that supports better praxis (reflection + action) in equity-promoting patient engagement. |
Diversity Jigsaw | A tool used to recognize the multidimensional nature of individuals’ experiences and to promote inclusivity in patient engagement. (.pdf download) |
Asset Mapping Activity | A tool used to identify and mobilize existing skills, knowledge, relationships, organizations, physical infrastructure, and other available resources within a patient engagement project. |
Engagement Meter | A tool used to monitor and reflect on different levels of patient engagement in decision-making |
Video Playlist | |
Podcast | S2E2 of Per Usual Podcast – Listen to EMPaCT’s meaningful and purposeful approach to equity, diversity, and inclusion in patient engagement in research |
Making an Impact Tool | |
Virtual Community of Practice | In 2024, EMPaCT launched a Virtual Community of Practice on equity-promoting patient engagement in health research, policy, and practice. This community of practice brings together people with lived experience, practitioners, researchers, and health system leaders to share learnings and build competencies in equity-focused engagement. Interested in learning more? Please contact Dr. Ambreen Sayani at ambreen.sayani@wchospital.ca. |
Request a knowledge product | EMPaCT has authored four academic publications and over 27 confidential reports for health system partners seeking to advance equity in their work. Interested in a knowledge product from EMPaCT? Please contact Dr. Ambreen Sayani at ambreen.sayani@wchospital.ca. |
Publications | EMPaCT has published various articles on equity promoting patient engagement. (See below) |
- Building equitable patient partnerships during COVID19: Challenges and key considerations.
Sayani, A., Maybee A., Manthorne J., Parsons. J., Bloch. G., Hwang, S. W, Nicholson, E., & Lofters, A. (2021). Healthcare Policy 17 (1). - Equity-Mobilizing Partnerships in Community – EMPaCT: Co-designing patient engagement to promote health equity.
Sayani, A., Maybee A., Manthorne J., Parsons. J., Bloch. G., Hwang, S. W, Nicholson, E., & Lofters, A. and the members of Equity-Mobilizing Partnerships in Community (2022). Healthcare Quarterly 24 (Special issue). - Using the Power Wheel as a transformative tool to promote equity through spaces and places of patient engagement.
Sayani, A., Cordeaux, E., Wu, K., Awil, F., Garcia, V., Hinds, R., Teji, T., Khan, O., Lee, B., Mensah, D., Monteith, L., Masawi, M., Rathbone, M., Robinson, J., Sterling, S., Wardak, D., Amsdr, I., Khawari, M., Niwe, S., Hussain, A., Forster, V. J., & Maybee, A. (2024). BMJ Open. - HowNotToDoPatientEngagement: the engaging with purpose patient engagement framework based on a twitter analysis of community perspectives on patient engagement.
Dunstan, B., Buchanan, F., Maybee, A. Lofters, A. Sayani, A. (2023). Research Involvement and Engagement 9, 119
Awards
- Engaging Multi-stakeholders for Patient Oriented research Wider Effects & Reach (EMPOWER) Award, Ontario Strategy for Patient-Oriented Research (SPOR) Support Unit (OSSU) (2021). The Ontario SPOR SUPPORT Unit is supported by the Canadian Institutes of Health Research and the Province of Ontario.
- Quality Award. Quality Improvement Patient Engagement Award, Women’s College Hospital (2022).
Funding in support of our work
Funder | Project |
Public Health Agency of Canada | Scaling up Equity-Mobilizing Partnerships in Community (EMPaCT) to Facilitate Intersectoral Action on the Social Determinants of Health |
Canadian Institutes of Health Research | Promoting equity, diversity and inclusion in patient-oriented research by disseminating lessons learned from a co-designed innovation in equity-focused patient engagement: Equity-Mobilizing Partnerships in Community (EMPaCT) |
Canadian Institutes of Health Research | An equity-oriented patient engagement theory of change model |
Ontario Strategy for Patient-Oriented Research (SPOR) Support Unit (OSSU) | Co-building Equity-Mobilizing Partnerships in Community (EMPaCT) to increase impact through equitable patient-oriented partnerships in research, policy and practice. |
The members of EMPaCT cover a wide range of diverse and intersectional lived experiences. Our experiences are best represented by the diversity jigsaw.
EMPaCT is grateful for the support of members of the EMPaCT Knowledge to Action Committee who help shape its knowledge dissemination activities and tools.
- Dr. Ibukun Abejirinde – Scientist, Trillium Health Partners
- Shivani Chandra – Operational Lead, Health System & Policy Innovation, Women’s College Hospital
- Trish Chatterpaul – Manager, System Strategy, Planning, Design & Implementation (Health Equity), Ontario Health
- Brady Comeau – Senior Program Lead, Patient Safety, Equity, and Engagement, Healthcare Excellence Canada
- Emily Cordeaux – Implementation Lead, EMPaCT, Women’s College Hospital
- Brianna Dunstan – Student, Masters in Translational Research, University of Toronto
- Hilary Edelstein – Assistant Director, Ontario SPOR SUPPORT Unit
- Annemarie Edwards – Vice President, Cancer Strategy and Innovation, Canadian Cancer Society
- Dr. Vicky Forster – Patient and Community Engagement Lead, Women’s College Hospital
- Mohaddesa Khawari – Research Assistant, Women’s College Hospital
- Dominic Jarrett – Learning Disabilities Development Manager, North Ayrshire Health & Social Care Partnership
- Theresa Kay – Director of Professional Practice, Women’s College Hospital
- Bilal Khan – Lead, Equity, Inclusion and Diversity, and Anti-Racism, Ontario Health
- Dr. Kerry Kuluski – Dr. Mathias Gysler Research Chair in Patient and Family-Centered Care, Institute for Better Health, Trillium Health Partners
- Alies Maybee – Independent Patient Partner, Co-Initiator (Patient partner lead), EMPaCT
- Dr. Priscilla Medeiros – Knowledge Mobilization and Community Engagement Specialist, Edwin S.H. Leong Centre for Healthy Children
- Salva Niwe – Student, Health Sciences, University of Waterloo
- Kathy Nguyen – Communications Advisor, Women’s College Hospital
- Dr. Aisha Lofters – Chair in Implementation Science, Peter Gilgan Centre for Women’s Cancers, Women’s College Hospital
- BC Pomeroy – Independent Patient Partner
- John Riley – Assistant Director, Ontario SPOR SUPPORT Unit
- Dr. Ambreen Sayani – Scientist, Women’s College Research Institute, Women’s College Hospital, Co-Initiator (Scientific lead), EMPaCT
- Dr. Jay Shaw – Tier 2 Canada Research Chair in Responsible Health Innovation, University of Toronto
- Dr. Carolyn Steele Gray – Tier 2 Canada Research Chair in Implementing Digital Health Innovation, University of Toronto
- Dr. Shelley Vanderhout – Scientist, Learning Health Systems, Institute for Better Health, Trillium Health Partners
- Adrienne Zarem – Patient Partner, Healthcare Excellence Canada